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  1. Last week
  2. Just a little over 3 weeks until we are together again! Even from a distance you and your patients will feel the love and the community that only an ACHA symposium/conference brings. There will be a little of everything that you’ve come to expect from ACHA over the past 23 years!! So, professionals please join us and tell your patients and their family members about this too. Please print and share this flyer with everyone. As Dr. Fred Wu said, “We’re all in this fight together, and it’s only right that we share and learn together as well". Register here for a day of learning, n
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  4. During recent cardiologist appointment he brought up ICD being preventive care for TOF. I have met with a cardiac electrophysiologist , very recently and I just don’t know... I’m 36 and doing well,at the moment! Looking for other opinions/experience from my peers! Thank you!
  5. ACHA Webinar: Healthy Lifestyle Series: Exercising with CHD Wednesday, May 26, 2021, 7 p.m. – 8 p.m. EDT Presenters: Melissa Hartman and Keri Shafer, MD Join us for an interactive exercise demonstration from Melissa Hartman, Exercise Physiologist and Certified Personal Trainer, who is currently an instructor in the Health and Human Performance/Exercise Science Program at Keiser University Jacksonville, FL. Melissa, a CHD patient, was born with tetralogy of Fallot. Follow Melissa (@hearttohartman) on Instagram. Following Melissa’s presentation, Keri Shafer, MD, FACC, will
  6. Join ACHA on July 10th for our Virtual Empowerment Symposium: Together from a Distance. While we are disappointed we will not be gathering in-person this July for our 9th National Conference, which has been postponed to June 2022, we are thrilled we will still be able to gather virtually! With that in mind, our Virtual Empowerment Symposium has been created as a live one-day opportunity for patients, family members and medical providers to come together to learn about CHD from the experts and from each other. The day will include information sessions as well as breakout rooms an
  7. Lub Dub: What You Need to Know About Heart Rhythms Wednesday, May 19, 2021, 7 p.m. – 8 p.m. EDT Presenter: Scott Cohen, MD About the Webinar Do you know that rhythm problems or arrhythmias are one of the most common problems faced by adult congenital heart disease (ACHD) patients? Do you have a history of palpitations, or a fast or slow heart rate? Do you wonder if you are at risk of developing rhythm issues as you age? If so, mark your calendars to attend this webinar. Dr. Scott Cohen, ACHD cardiologist, will discuss risk factors and treatment options for arrhythmias in th
  8. Did you know that pulmonary arterial hypertension (PAH), which affects up to 10% of adults with congenital heart disease, is a condition where the blood vessels passing to the lungs become unhealthy? This causes the right side of the heart to work harder. PAH limits the ability to exercise, and it also increases the risk for hospitalization and death. Do you want to know more? If so, register today. You will learn more about the newest treatment therapies and how to live your life to the fullest with PAH. You don’t want to miss this webinar, presented by Richard Krasuski, MD, Vice-Chair of the
  9. Are you passionate about sharing your CHD story with others? Join ACHA Senior Peer Mentor Rick P. as he shares valuable tips on how to effectively share your CHD story to make the biggest impact on your audience. If so, join us tonight, Wednesday, April 28, 2021 at 7:00 pm EDT. CLICK HERE TO REGISTER
  10. So Many Tests: Should I Worry About My Radiation Risk? Wednesday, April 21, 2021, 7 p.m. – 8 p.m. EDT Presenter: Marlon Rosenbaum, MD About the Webinar There are many ways to image the heart. Techniques include echocardiography, cardiac CT scan, MRI and catheterization. Did you know that each of these uses different methods to get a picture of your heart? Your adult congenital heart disease (ACHD) doctor will decide on which study you need based on the questions he or she wants answered. If you want to know more about the role of these imaging tests in ACHD, the reason each is
  11. The Pros and Cons of Warfarin versus New Oral Anticoagulants (NOAC's) Wednesday, April 7, 2021, 7 p.m. – 8 p.m. EDT Presenter: David Gregg, MD About the Webinar Some adult patients with congenital heart disease (CHD) take anticoagulants or blood thinners. Do you know why you might need this type of medicine? Do you want to learn more about warfarin and NOACs? Have you wondered how these drugs work and what drug interactions they might have? This webinar will explore what we know about the newer anticoagulants in CHD. It will also discuss the difference in anticoagulants and antipla
  12. Prevalence of Cognitive Impairment in CHD Survivors: A Pilot Study Wednesday, March 24, 2021, 7 p.m. – 8 p.m. EDT Presenter: Carla Rodriquez-Monserrate, MD About the Webinar Did you know that children with congenital heart disease (CHD) commonly have neurodevelopmental and psychosocial impairments? The areas most often affected are memory, attention, behavioral control, and executive function. In adult CHD patients, studies are limited; however, they do suggest similar findings. This puts adults with CHD at increased risk for cognitive impairment and dementia. Yet, no studies have
  13. The 'gothic' arch is a narrowing at the transverse aortic arch and may lead to high BP. Does anyone have a gothic arch or know how common this is? Has anyone had a sternotomy or thoracotomy for a patch repair (or other intervention) on a gothic arch?
  14. Last night's webinar is now available for viewing! Click here to listen, watch and learn more about ACHA's ACHD Clinic Directory and ACHD Accreditation Program through the lens of ACHA Peer Mentors, Emily W. and Ryan S.
  15. It's not too late to register for ACHA's Wellness Wednesday presentation tonight, "Ask A Peer Mentor: Clinic Directory, Accreditation and Empowerment". You will find out how the ACHD Clinic Directory and ACHA ACHD Accreditation benefit you, the patient. Don't miss out on learning how empowering these tools are. Our panelists are ACHA Peer Mentors, Emily W and Ryan S, along with ACHA Accreditation Manager, Misty Sharpe and ACHA Senior Education Manager, Paula Miller. Register now at www.achaheart.org/AWW. askapeermentordirectoryaccreditationFlyer.pdf
  16. My name is Heidi and I am 52 years old. I just found out I have CHD because I drove myself to the emergency room thinking I pulled a muscle. 72 hours later I had an ablation, an ICD, and six pill prescriptions. The doctors stood in a row above my bed in the CICU and told me my right ventricle is not shaped correctly and that I was born that way. Two weeks ago I was running 8 miles, two years ago I was participating in an Olympic Triathlon. As a child I was always sick. Obviously my parents never knew it was because of my heart. When I go to the Heart Failure clinic I am given
  17. Greetings!! I am NEW to the Community and am wondering who else out there had Dr. Kirklin or Dr. Brunswick as their surgeons. I had a Blalock Taussig Shunt in 1982, then Tetralogoy of Fallot Repair in 1983. Thanks so much~ Marisa1981
  18. Psychosocial Effects of Physical Isolation in Response to a Pandemic Wednesday, February 24, 2021, 7 p.m. – 8 p.m. EST Presenters: Ali Zaidi, MD, Meredith Kalbacker, LCSW and Alex Weisman Moderator: Marissa Mendoza (ACHA Peer Mentor) About the Webinar: Has the isolation caused by the COVID-19 pandemic caused you to feel out of sorts, sad and lonely? Have the changes in your daily life and the fear of what will happen caused you emotional stress? If so, you will want to attend this webinar. It will be a unique and enlightening conversation. The panelists inc
  19. Hi Carlie! Sorry nobody has replied to this yet. I actually had an atrioventricular septal defect and I was born in the early 70s. It wasn't caught prenatal, but they did do surgery when I was about 6 months old. I then had to have a couple more surgeries as I grew and the wall they basically built had to be expanded. I would have to look at my surgical reports to see how they did that back then. I'm sure it's a little different than how they would do it now (they actually had to re-build my wall a little over 10 years ago, and that was still via an open heart surgery). I am so sor
  20. Hi, My sister was born with a ventricular septal defect in the early 1960s in the Twin Cities (Minneapolis/St. Paul). I am trying to learn what type of options she would have had at the time, and as a child. She never had heart surgery, and died at the age of 40. I am trying to learn if she could have gotten help at some point, and what that would have been. She mentioned she might have been a candidate for a heart & lung transplant as an adult, but never had serious enough symptoms (so she said) to warrant getting a transplant. I do not have her medical records; I'm just starti
  21. I’m new too. I wanted to speak to others about our shared condition...
  22. Hi. I have all this. Is there anyone out there with the same? I feel very alone.
  23. I recently found out about this program and I'm wondering what benifits this program has to offer and how I can become a part of it.
  24. ACHD Follow-Up: I Don’t Need That, I’m Fixed Wednesday, August 29, 2020, 7 p.m. – 8 p.m. EDT Presenter: George Lui, MD About the Webinar Have you ever been told that you are “cured” or “fixed”? Do you see your ACHD cardiologist regularly? Where you ever out of care? Do you know the common residual defects related to your congenital heart disease (CHD)? Do you know the different types of treatment? If you want to learn more and find out why staying in care is so important, you will want to attend this webinar. Dr. George Lui will review common residual defects and abnormalities afte
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