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  2. Hi. I have all this. Is there anyone out there with the same? I feel very alone.
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  4. I recently found out about this program and I'm wondering what benifits this program has to offer and how I can become a part of it.
  5. ACHD Follow-Up: I Don’t Need That, I’m Fixed Wednesday, August 29, 2020, 7 p.m. – 8 p.m. EDT Presenter: George Lui, MD About the Webinar Have you ever been told that you are “cured” or “fixed”? Do you see your ACHD cardiologist regularly? Where you ever out of care? Do you know the common residual defects related to your congenital heart disease (CHD)? Do you know the different types of treatment? If you want to learn more and find out why staying in care is so important, you will want to attend this webinar. Dr. George Lui will review common residual defects and abnormalities afte
  6. Hello my name is Paula and I was recommended to join this group by my Cardiologist. I was born with a hole in my heart and when I was 35 I had to have my heart valve replaced again. During my recovery after surgery I had a stroke and seizures that left me in a coma for a few days. I had a hard time recovering from everything, but eventually I became my self again. When I hit 40 I was diagnosed with breast cancer. I have have completed treatments and now I am just on hormone therapy. Many people have wondered if my heart condition lead to the cancer and I wonder if anyone else has had the
  7. until
    Presenters: Tabitha Moe, MD With improved medical care, adults with congenital heart disease (CHD) are living longer. This is great, yet brings with it increased chances of developing other cardiovascular diseases, as well as other diseases common in the elderly. Do you know what some of these health conditions are? Are you susceptible to getting them? Do you know what you can do to lessen your chances of developing them? As you age, your care warrants close communication between your ACHD cardiologist and your primary care provider. Register for this webinar today. Dr. Tabitha Moe, noted
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    Join Aliza Marlin for a 30-minute break in the middle of your day for classic yoga poses leading to deep stretching, mindful breathing and an opportunity to "bliss out." No prior yoga experience necessary. All are welcome! Aliza was born with aortic stenosis and had her last surgery 5 years ago. She is an active yogi and yoga teacher firmly believing that yoga builds resilience in every way. We are happy to offer our Monday Motivation sessions at no cost, but we hope you will consider making a donation to ACHA. Our suggested donation amount is $5. You will have the option to add a do
  9. until
    Join Aliza Marlin for a 30-minute break in the middle of your day for classic yoga poses leading to deep stretching, mindful breathing and an opportunity to "bliss out." No prior yoga experience necessary. All are welcome! Aliza was born with aortic stenosis and had her last surgery 5 years ago. She is an active yogi and yoga teacher firmly believing that yoga builds resilience in every way. We are happy to offer our Monday Motivation sessions at no cost, but we hope you will consider making a donation to ACHA. Our suggested donation amount is $5. You will have the option to add a do
  10. until
    Join Aliza Marlin for a 30-minute break in the middle of your day for classic yoga poses leading to deep stretching, mindful breathing and an opportunity to "bliss out." No prior yoga experience necessary. All are welcome! Aliza was born with aortic stenosis and had her last surgery 5 years ago. She is an active yogi and yoga teacher firmly believing that yoga builds resilience in every way. We are happy to offer our Monday Motivation sessions at no cost, but we hope you will consider making a donation to ACHA. Our suggested donation amount is $5. You will have the option to add a do
  11. until
    Join Aliza Marlin for a 30-minute break in the middle of your day for classic yoga poses leading to deep stretching, mindful breathing and an opportunity to "bliss out." No prior yoga experience necessary. All are welcome! Aliza was born with aortic stenosis and had her last surgery 5 years ago. She is an active yogi and yoga teacher firmly believing that yoga builds resilience in every way. We are happy to offer our Monday Motivation sessions at no cost, but we hope you will consider making a donation to ACHA. Our suggested donation amount is $5. You will have the option to add a do
  12. until
    Presenters: Paul Stelzer, MD, Ismail El-Hamamsy, MD, PhD, and Ali Zaidi, MD Are you an adult diagnosed with bicuspid aortic valve (BAV)? Did you know that 1% to 2% of the population has BAV? If you want to learn more, you should register for this webinar. Drs. Paul Stelzer, Ismail El-Hamamsy and Ali Zaidi from Mount Sinai Hospital in New York City will explain the basics of BAV. They will also talk about available valve replacement options. In addition, the durability of each option will be discussed, as well as how each option impacts quality of life. This information will help you make
  13. until
    Presenters: Seiji Ito, MD, and Marguerite Wevers, RN Have you ever wondered about the different types of tests that your ACHD cardiologist has ordered for you, such as cardiac MRI, cardiac CAT scan, echo, and stress tests? Why does he/she order specific tests and not others? What is it like going through all this testing? This webinar will help prepare you for what to expect. It will also help you understand why your doctor might order multiple tests. You don’t want to miss the chance to learn from ACHD cardiologist Dr. Seiji Ito, MD, and Clinical Program Coordinator Marguerite Wevers, RN
  14. until
    Presenters: Arwa Saidi, MB, BCh, MEd, Jonathan Cramer, MD, Marc Cribbs, MD, Camille Richards, MSN, FNP-BC, and Ryan Stephens, DNP(c), FNP-C, MBA Telemedicine is the wave of the future. It makes it possible for your healthcare provider to evaluate, diagnose, and treat you wherever you are using remote technologies, like audio and video. Telehealth includes the aspects of telemedicine, but at the same time, has a broader definition. You might be thinking, especially during this unexpected time of uncertainty, “What does all this mean for me? Will I ever see my healthcare provider in person
  15. In accordance with the CDC's guidelines and in an effort to keep our community healthy during the COVID-19 pandemic, we have made the difficult, yet necessary decision to cancel all of ACHA’s Walk for 1 in 100 events through June 30. Each of the seven Spring Walk for 1 in 100 events have been converted to ACHA Your Way events. More details are coming soon. During this time, ACHA will remain steadfast in delivering on our mission of providing timely, accurate information of importance to the CHD community, including COVID-19 pandemic updates. Read the full update here. Reg
  16. In accordance with the CDC's guidelines and in an effort to keep our community healthy during the COVID-19 pandemic, we have made the difficult, yet necessary decision to cancel all of ACHA’s Walk for 1 in 100 events through June 30. Each of the seven Spring Walk for 1 in 100 events have been converted to ACHA Your Way events. More details are coming soon. During this time, ACHA will remain steadfast in delivering on our mission of providing timely, accurate information of importance to the CHD community, including COVID-19 pandemic updates. Read the full update here. Reg
  17. In accordance with the CDC's guidelines and in an effort to keep our community healthy during the COVID-19 pandemic, we have made the difficult, yet necessary decision to cancel all of ACHA’s Walk for 1 in 100 events through June 30. Each of the seven Spring Walk for 1 in 100 events have been converted to ACHA Your Way events. More details are coming soon. During this time, ACHA will remain steadfast in delivering on our mission of providing timely, accurate information of importance to the CHD community, including COVID-19 pandemic updates. Read the full update here. Reg
  18. In accordance with the CDC's guidelines and in an effort to keep our community healthy during the COVID-19 pandemic, we have made the difficult, yet necessary decision to cancel all of ACHA’s Walk for 1 in 100 events through June 30. Each of the seven Spring Walk for 1 in 100 events have been converted to ACHA Your Way events. More details are coming soon. During this time, ACHA will remain steadfast in delivering on our mission of providing timely, accurate information of importance to the CHD community, including COVID-19 pandemic updates. Read the full update here. Reg
  19. until
    In response to the cancellation of events and widespread “safer at home” policies that have brought much disruption and uncertainty to our lives, ACHA is excited to present a Midweek Motivation Virtual Series made up of brief live presentations on Wednesdays from 1:00-1:30 p.m. EDT / 10:00-10:30 a.m. PDT throughout May. These sessions are meant to create a space for the CHD community to come together, take a break, learn tools for navigating the current situation and to connect with one another. Sessions will be led by members of your CHD community. Topic: Quarantine Baking
  20. until
    In response to the cancellation of events and widespread “safer at home” policies that have brought much disruption and uncertainty to our lives, ACHA is excited to present a Midweek Motivation Virtual Series made up of brief live presentations on Wednesdays from 1:00-1:30 p.m. EDT / 10:00-10:30 a.m. PDT throughout May. These sessions are meant to create a space for the CHD community to come together, take a break, learn tools for navigating the current situation and to connect with one another. Sessions will be led by members of your CHD community. Topic: Dance Workout Presenter: Ca
  21. Bicuspid Aortic Valve Patients: What Are Your Options? Wednesday, June 10, 2020, 7 p.m. – 8 p.m. EDT Presenters: Paul Stelzer, MD, Ismail El-Hamamsy, MD, PhD, and Ali Zaidi, MD About the Webinar Are you an adult diagnosed with bicuspid aortic valve (BAV)? Did you know that 1% to 2% of the population has BAV? If you want to learn more, you should register for this webinar. Drs. Paul Stelzer, Ismail El-Hamamsy and Ali Zaidi from Mount Sinai Hospital in New York City will explain the basics of BAV. They will also talk about available valve replacement options. In addition, the du
  22. ACHD Imaging: Doc, Do I Really Need All These Tests? Wednesday, June 3, 2020, 7 p.m. – 8 p.m. EDT Presenters: Seiji Ito, MD, and Marguerite Wevers, RN About the Webinar Have you ever wondered about the different types of tests that your ACHD cardiologist has ordered for you, such as cardiac MRI, cardiac CAT scan, echo, and stress tests? Why does he/she order specific tests and not others? What is it like going through all this testing? This webinar will help prepare you for what to expect. It will also help you understand why your doctor might order multiple tests. You don’t want t
  23. Ask an ACHD Specialist: The ABCs of Telemedicine – Part 1 Thursday, May 28, 2020, 7 p.m. – 8 p.m. EDT Presenters: Arwa Saidi, MB, BCh, MEd, Jonathan Cramer, MD, Marc Cribbs, MD, Camille Richards, MSN, FNP-BC, and Ryan Stephens, DNP(c), FNP-C, MBA About the Webinar Telemedicine is the wave of the future. It makes it possible for your healthcare provider to evaluate, diagnose, and treat you wherever you are using remote technologies, like audio and video. Telehealth includes the aspects of telemedicine, but at the same time, has a broader definition. You might be thi
  24. Catheter-Based Options for Valve Problems for ACHD Patients Thursday, May 7, 2020, 7 p.m. – 8 p.m. EDT Presenter: C. Huie Lin, MD, PhD About the Webinar Improvements in cardiac catheterization allow great advances in the care of patients with congenital heart disease. Did you know that recently developed procedures make it possible to treat valvular heart disease without open heart surgery? Dr. C. Huie Lin will talk about what’s currently being done. He will also tell us what is on the horizon. This webinar is not to be missed! Register today. REGISTER NOW: https:/
  25. Support the Adult Congenital Heart Association by purchasing a pin! 

    $5.00
  26. Ask an ACHD Specialist: COVID-19 Q&A Tuesday, April 21, 2020, 8:00 – 9:00 p.m. EDT Presenters: George Lui, MD, Jeremy Nicolarsen, MD, and Arwa Saidi, MD, BCh, MEd ABOUT THE WEBINAR: We hope you have found our three webinars on COVID-19 for the CHD community to be informative and helpful resources during this unprecedented period. As time passes, we know that there are still so many questions you may have. On Tuesday, April 21, at 8 p.m. EDT, please join ACHA for a full hour Q&A session with ACHD physicians George Lui, MD, Jeremy Nicolarsen, MD, and Arwa S. Saidi, MB
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