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MSharpe_TN

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MSharpe_TN last won the day on April 30 2020

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  • Birthday 06/16/1987

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  1. until
    Announcement (February 24, 2021) The safety of our ACHA event attendees has always been of the utmost importance. With that in mind, and in light of the ongoing COVID-19 pandemic, we are announcing today that we have rescheduled our 9th National Conference, which will remain an in-person event. We hope you will join us June 23-25, 2022! The conference will take place at the same location—the Radisson Blu Mall of America in Bloomington, MN. If you already registered for a previous conference date, your registration will transfer to this new event date. All previous hotel block reservations must be cancelled and rebooked. Please email info@achaheart.org with any questions regarding a previous registration. To still come together this summer as planned, we will host a one-day virtual conference on July 10, 2021. We hope even more of you can join us from the comfort of your own home to experience the community of an ACHA event, as well as the caliber of speakers and presentations that attendees have come to expect at our conferences. More details and registration for this event will be available in March. Please stay tuned! ACHA offers our unique 9th National Conference, from June 23-25, 2022, with two separate educational tracks that anyone registered can attend. The Patient/Family Conference offers attendees the chance to hear the latest information about managing their disease from top national congenital heart specialists. It is also a great opportunity to meet others with CHD and to give and receive support. The Health Professionals Conference is an opportunity for health professionals with a focus on ACHD to strengthen their skills and learn about new strategies for treating their patients and improving their quality of life. This track also brings together top international congenital heart researchers working to move the CHD field forward by developing new treatments for CHD. *We offer CMEs and CEUs at the National Conference. Attendees must register as a medical professional member in order to obtain them. Who: There are two different tracks associated with the National Conference: Patient/Family and Health Professionals. ACHA encourages ACHD patients, family members, teens and young adults diagnosed with congenital heart disease to attend the conference. We also invite ACHD doctors, physician assistants, nurse practitioners, social workers, nurses, fellows and residents to attend as well. What: The ACHA National Conferences offers attendees an opportunity to meet others who are affected by CHD through educational sessions and networking opportunities. Some previous conference offerings included the latest research and educational topics; opportunities to interact with medical providers; panel discussions from the patient viewpoint; and educational lectures about specific defects, self-advocacy, legislative advocacy, newer medical therapies, complementary therapies, 3D printing options, preparing for surgery, family planning/contraception, the challenges and gifts of having a loved one with CHD, navigating insurance, and more. Click here for more information and to register
  2. until
    ACHA is excited to continue its partnership with Stanford Health Care’s ACHD Program’s Patient & Family Advisory Council to bring you a quarterly series of virtual CHD Conversations. Join us for patient-led, town hall-style presentations. Register for free today! Presenters: Margaret Goddard, MS, and Julie Fletcher Margaret Goddard and Julie Fletcher serve as Patient Partners on Stanford Health Care's Adult Congenital Heart Disease Patient & Family Advisory Council. Margaret was born with tetralogy of Fallot which led to four open-heart surgeries and an ICD placement. She has three daughters, one son and two grandchildren. Margaret is a business partner with her wife in a psychotherapy practice. Margaret has had great success treating her partly CHD-related PTSD with psychotherapy and has found it to be a life saver in managing mental health and chronic disease. Julie was born with Shone's Complex. She underwent her first heart surgery at two years old and four open-heart surgeries between the age of 6 and 29 years old. In her free time, Julie enjoys walking with her family, playing online video games with her husband and volunteering with fellow "CHD'ers". Julie recognizes the importance of mental health because of the challenges she knows ACHD patients and caregivers face on a daily basis. This virtual presentation is made possible in part by sponsorship support provided by: Janssen Pharmaceutical Companies of Johnson & Johnson Click here to register
  3. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  4. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  5. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  6. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  7. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  8. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  9. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  10. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  11. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  12. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  13. Join us as we walk for the more than 2.5 million people living with congenital heart disease (CHD) across the country. Since 1998, the Adult Congenital Heart Association (ACHA) has been empowering and advocating for the 1 in 100 children and adults impacted by CHD. ACHA funds ACHD-specific research grants and is a leading organization in advocating for research at the federal level; has accredited 40+ ACHD programs across 25 states; and offers extensive educational tools, including defect-specific resources, weekly webinars, and a searchable clinic directory. In 2021, we will host walks in 11 communities to raise money for continued research, education and outreach for the CHD community. We’re here to empower adults to take an active role in their cardiac care, to educate parents on the lifelong specialized care their young child will need in the future, and to support young adults through the transition to adult CHD care. We hope you will join us and help us further our impact by supporting ACHA’s Walk for 1 in 100. Click here for more information and to register
  14. until
    ACHA is excited to continue its partnership with Stanford Health Care’s ACHD Program’s Patient & Family Advisory Council to bring you a quarterly series of virtual CHD Conversations. Join us for patient-led, town hall-style presentations. Register for free today! Presenter: Alice Georgitso, MPH Alice Georgitso received a heart transplant in 2017, following lifelong care to treat CHD. At 31 years old, Alice has undergone closed-heart surgery, four open-heart surgeries, two cardiac ablations, the challenges of a mechanical valve and an ICD, as well as complications from a heart attack and ischemic stroke. She serves as Chairperson on Stanford Health Care's Adult Congenital Heart Disease Patient & Family Advisory Council where she assisted in developing a Peer-to-Peer Program and is a Mentor to ACHD patients pre- and post- organ transplantation. Alice has applied her experience to advocate for patient-centered care and empower others to be their best advocate on their journey to heart transplantation. This virtual presentation is made possible in part by sponsorship support provided by: Janssen Pharmaceutical Companies of Johnson & Johnson Click here to register
  15. until
    About the Virtual Empowerment Symposium While we are disappointed we will not be gathering in-person this July for our 9th National Conference, which has been postponed to June 2022, we are thrilled we will still be able to gather virtually! With that in mind, our Virtual Empowerment Symposium has been created as a live one-day opportunity for patients, family members and medical providers to come together to learn about CHD from the experts and from each other. The day will include information sessions as well as breakout rooms and opportunities to engage with members of the CHD community. Learn more about what we will be focusing on in the schedule below. At ACHA, we understand it is an expense and a commitment to travel to one of our in-person conferences—so we hope that through this one-day, low-cost virtual gathering, even more of you can join us from the comfort of your own home to take part in the community of an ACHA event! Plus, you will experience the caliber of speakers and presentations that attendees have come to expect at our conferences. Please note our virtual symposium should be attended live, as we do not plan on archiving this interactive event. We cannot wait for you to join us for this exciting day of learning, discussions, social opportunities and more! Click here to register Event Schedule with Speakers Who Should Attend ACHA encourages ACHD patients, family members, teens and young adults diagnosed with congenital heart disease to attend the conference. We also invite ACHD doctors, physician assistants, nurse practitioners, social workers, nurses, fellows and residents to attend as well. Medical providers, click here for a flyer to use at your ACHD program! Sponsored by:
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