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pala208

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pala208 last won the day on April 13 2020

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  1. Join ACHA tomorrow to learn how to find ACHD care when it's not nearby. Register here!
  2. Want to learn more about the current status of research in ACHD and the vital role patients play as partners in the research process. If so, you'll want to attend ACHA's webinar this Wed night, 8/4/2021. Register today at https://bit.ly/2TYVmrA.
  3. 24 Hours Left to Register for the ACHA Virtual Empowerment Symposium! Registration Closes at 12:00 noon EDT Friday, 7/9/2021
  4. Webinar: Ask a Peer Mentor: LGBTQ+ and the ACHD Experience Date: Wednesday, June 30, 2021 Time: 7 p.m. – 8 p.m. EDT Presenters: Stephen Cook, MD, FACC and ACHA Peer Mentors Ken W. and Kim E. About the Webinar As part of ACHA's ongoing commitment to diversity, equity, and inclusion, it is important to create opportunities to discuss topics pertinent to every patient in the CHD community. To conclude Pride Month, join Dr. Stephen Cook and ACHA Peer Mentors Ken W. and Kim E., both adults living with CHD, as they discuss their own personal experiences as part of the CHD and LGBTQ+ communities. While CHD affects 1 in 100 individuals regardless of socioeconomic status, race, ethnicity, or gender, each person's journey with CHD is different. In addition to type of defect and surgery, personal experiences and attributes, such as race, sexual orientation and gender identity can also influence how someone accesses and receives healthcare. According to the latest Gallup poll, around 5.6% of U.S. adults identify as LGBTQ+. Underrepresented minorities, including not only sexual and gender minorities, but also adults with CHD, often face disparities and bias in healthcare resulting in additional stressors that may impact patient well-being and health outcomes. Register for this webinar today to learn more from our speakers and for the opportunity to ask them questions. About the Speakers Stephen Cook, MD, FACC, is the Director of the IU Health Adult Congenital Heart Disease Program in Indianapolis, IN. Dr. Cook served on ACHA’s Task Force on ACHD Health Disparities and Diversity and has also been selected by the American College of Cardiology to serve on the Diversity and Inclusion Committee. The goal of this committee is to harness the power of diversity to advance patient care and improve health equity among unique patient populations. Ken W. was born in 1981 with tetralogy of Fallot and like many adults with CHD, thought he had been fixed and was lost to cardiology care as an adolescent. He returned to care in August 2011 following a biking accident. Ken became a Peer Mentor to help other adults with CHD and their family members navigate the challenging and overwhelming aspects of life with congenital heart disease. Kim E. was born in 1966 and is a mother of three with transposition of the great vessels, pulmonary stenosis, and ventricular septal defect. Over the years, she has had multiple surgeries. Kim has been involved with ACHA for many years and became a Peer Mentor to support others on their journey. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families, and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org.
  5. The Latest Treatments for Congenitally Corrected Transposition of the Great Arteries (CCTGA) Date: Wednesday, 6/23/2021 Time: 7 pm - 8 pm EDT Presenter: Salil Ginde, MD About the Webinar Did you know that the ventricles or pumping chambers in the hearts of people born with congenitally corrected transposition of the great arteries (CCTGA) are reversed? While the blood flow going to the body and lungs is normal, these individuals are still at risk for several challenges. One is the need for heart surgery early in life. Others include the development of symptoms caused by pump dysfunction, leaky heart valves, and abnormal electrical conduction of the heart. Dr. Salil Ginde will discuss these unique challenges. He will also talk about novel treatments designed to improve outcomes. If you want to learn more, register today for this webinar. REGISTER NOW: https://bit.ly/3gRgM3n About the Presenter Dr. Salil Ginde is a board certified adult congenital heart disease (ACHD) cardiologist and Associate Director of the ACHD Program at the Medical College of Wisconsin in Milwaukee, WI. He graduated from University of Illinois College of Medicine and then completed his residency in both Internal Medicine and Pediatrics at University of Chicago. He moved to Milwaukee in 2009 to complete his Pediatric Cardiology and ACHD Fellowship at Children’s Hospital of Wisconsin, where he currently practices. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the nearly 2 million adults with CHD, their families, and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. This webinar was made possible in part by an unrestricted educational grant from Janssen, Inc. Pharmaceutical Companies of Johnson & Johnson. FlyerCCTGAGindeTS.pdf
  6. Just a little over 3 weeks until we are together again! Even from a distance you and your patients will feel the love and the community that only an ACHA symposium/conference brings. There will be a little of everything that you’ve come to expect from ACHA over the past 23 years!! So, professionals please join us and tell your patients and their family members about this too. Please print and share this flyer with everyone. As Dr. Fred Wu said, “We’re all in this fight together, and it’s only right that we share and learn together as well". Register here for a day of learning, networking, and socializing. See you on Saturday, July 10, 2022, beginning at 11:00 am EDT (or bring your cup of coffee and join us at 10:00 am for Coffee and Conversation).
  7. ACHA Webinar: Healthy Lifestyle Series: Exercising with CHD Wednesday, May 26, 2021, 7 p.m. – 8 p.m. EDT Presenters: Melissa Hartman and Keri Shafer, MD Join us for an interactive exercise demonstration from Melissa Hartman, Exercise Physiologist and Certified Personal Trainer, who is currently an instructor in the Health and Human Performance/Exercise Science Program at Keiser University Jacksonville, FL. Melissa, a CHD patient, was born with tetralogy of Fallot. Follow Melissa (@hearttohartman) on Instagram. Following Melissa’s presentation, Keri Shafer, MD, FACC, will join us for a panel discussion and Q&A session. Dr. Shafer is an Assistant Professor at Harvard Medical School and an attending cardiologist at Boston Children’s Hospital and Brigham and Women's Hospital with affiliate appointments at Boston Medical Center and Beth Israel Deaconess Medical Center. Register here.
  8. Join ACHA on July 10th for our Virtual Empowerment Symposium: Together from a Distance. While we are disappointed we will not be gathering in-person this July for our 9th National Conference, which has been postponed to June 2022, we are thrilled we will still be able to gather virtually! With that in mind, our Virtual Empowerment Symposium has been created as a live one-day opportunity for patients, family members and medical providers to come together to learn about CHD from the experts and from each other. The day will include information sessions as well as breakout rooms and opportunities to engage with members of the CHD community. Learn more about what we will be focusing on in the schedule below. Event schedule here. virtual symposium flyer_V2.pdf
  9. Lub Dub: What You Need to Know About Heart Rhythms Wednesday, May 19, 2021, 7 p.m. – 8 p.m. EDT Presenter: Scott Cohen, MD About the Webinar Do you know that rhythm problems or arrhythmias are one of the most common problems faced by adult congenital heart disease (ACHD) patients? Do you have a history of palpitations, or a fast or slow heart rate? Do you wonder if you are at risk of developing rhythm issues as you age? If so, mark your calendars to attend this webinar. Dr. Scott Cohen, ACHD cardiologist, will discuss risk factors and treatment options for arrhythmias in the ACHD population. Register today. REGISTER NOW: https://bit.ly/3dsuPsV About the Presenter Dr. Scott Cohen is a board certified adult congenital heart disease (ACHD) specialist and the medical director of the Wisconsin Adult Congenital Heart Disease Program in Milwaukee, WI. He graduated from the Saint Louis University School of Medicine and completed a fellowship in Adult Cardiovascular Disease at the Warren Alpert Medical School at Brown University in Providence, RI; a fellowship in Preventative Cardiology at the VA Medical Center in Providence, RI; and an ACHD fellowship at the Children's Hospital of Wisconsin in Milwaukee, WI. He has been involved in the creation in national guidelines and multicenter collaborative research in the field of adult congenital heart disease. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the nearly 2 million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. This webinar was made possible in part by an unrestricted educational grant from Janssen, Inc. Pharmaceutical Companies of Johnson & Johnson. FlyerLubDubCohen.pdf
  10. Did you know that pulmonary arterial hypertension (PAH), which affects up to 10% of adults with congenital heart disease, is a condition where the blood vessels passing to the lungs become unhealthy? This causes the right side of the heart to work harder. PAH limits the ability to exercise, and it also increases the risk for hospitalization and death. Do you want to know more? If so, register today. You will learn more about the newest treatment therapies and how to live your life to the fullest with PAH. You don’t want to miss this webinar, presented by Richard Krasuski, MD, Vice-Chair of the ACHA Medical Advisory Board, Director of the Adult Congenital Heart Disease Center, Director of Hemodynamic Research, and Professor of Medicine and Pediatrics at Duke University Medical Center . CLICK HERE TO REGISTER FlyerPAHKrasuskiTSFinal.pdf
  11. Are you passionate about sharing your CHD story with others? Join ACHA Senior Peer Mentor Rick P. as he shares valuable tips on how to effectively share your CHD story to make the biggest impact on your audience. If so, join us tonight, Wednesday, April 28, 2021 at 7:00 pm EDT. CLICK HERE TO REGISTER
  12. So Many Tests: Should I Worry About My Radiation Risk? Wednesday, April 21, 2021, 7 p.m. – 8 p.m. EDT Presenter: Marlon Rosenbaum, MD About the Webinar There are many ways to image the heart. Techniques include echocardiography, cardiac CT scan, MRI and catheterization. Did you know that each of these uses different methods to get a picture of your heart? Your adult congenital heart disease (ACHD) doctor will decide on which study you need based on the questions he or she wants answered. If you want to know more about the role of these imaging tests in ACHD, the reason each is used, and what the radiation exposure risk is, you won’t want to miss this webinar. Register today. REGISTER NOW: https://bit.ly/3kSx7oG About the Presenter Marlon Rosenbaum, MD, a member of the ACHA Medical Advisory Board, is the Director of the Schneeweiss Adult Congenital Heart Program at the Columbia University Medical Center and an Associate Professor of Medicine and Pediatrics at the College of Physicians and Surgeons of Columbia University. Dr. Rosenbaum is the co-author of Congenital Heart Disease in the Adult. He has a large ACHD practice, lectures extensively on ACHD and is responsible for cardiology fellowship training in ACHD. Dr. Rosenbaum is a Fellow of the American College of Cardiology and a member of the American Heart Association and International Society for Adult Congenital Heart Disease. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the nearly 2 million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. This webinar was made possible in part by an unrestricted educational grant from Janssen, Inc. Pharmaceutical Companies of Johnson & Johnson. flyerradiationrosenbaumTS.pdf
  13. The Pros and Cons of Warfarin versus New Oral Anticoagulants (NOAC's) Wednesday, April 7, 2021, 7 p.m. – 8 p.m. EDT Presenter: David Gregg, MD About the Webinar Some adult patients with congenital heart disease (CHD) take anticoagulants or blood thinners. Do you know why you might need this type of medicine? Do you want to learn more about warfarin and NOACs? Have you wondered how these drugs work and what drug interactions they might have? This webinar will explore what we know about the newer anticoagulants in CHD. It will also discuss the difference in anticoagulants and antiplatelet drugs. Register today so you don’t miss this webinar. This webinar is made possible in part by an unrestricted educational grant from Janssen, Inc. Pharmaceutical Companies of Johnson & Johnson. REGISTER NOW: https://bit.ly/2NlMNnX About the Presenter David Gregg, MD, serves on the Medical Advisory Board of the Adult Congenital Heart Association. He is the director of the Adult Congenital Heart Disease (ACHD) Program at the Medical University of South Carolina and the director of the Adult Echocardiography lab. He publishes and lectures regularly on imaging in ACHD and multimodality imaging and is excited to talk with you about warfarin and new oral anticoagulants. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the almost two million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. FlyerWarfarinvsNOACsFinalTS.pdf
  14. Prevalence of Cognitive Impairment in CHD Survivors: A Pilot Study Wednesday, March 24, 2021, 7 p.m. – 8 p.m. EDT Presenter: Carla Rodriquez-Monserrate, MD About the Webinar Did you know that children with congenital heart disease (CHD) commonly have neurodevelopmental and psychosocial impairments? The areas most often affected are memory, attention, behavioral control, and executive function. In adult CHD patients, studies are limited; however, they do suggest similar findings. This puts adults with CHD at increased risk for cognitive impairment and dementia. Yet, no studies have routinely looked at this. This webinar will review an ACHA-funded pilot study of adult CHD patients between 30 and 65 who were coming in for a routine clinic visit. Want to know more about this pilot study? Register for the presentation to learn more about the tool that was used and how the scores compared to population norms.This webinar is made possible in part by an unrestricted educational grant from Janssen, Inc. Pharmaceutical Companies of Johnson & Johnson. REGISTER NOW: https://bit.ly/3aAeh0Q About the Presenter Dr. Carla P. Rodriguez-Monserrate, a native of Puerto Rico, completed her fellowship in adult congenital heart disease (ACHD) and pulmonary hypertension at Harvard Medical School. Following her training, she joined the faculty as a clinician and researcher and is the recipient of an NIH T32 training grant. Her research efforts are centered on transition to adult congenital care, health disparities and cognitive impairment in ACHD population. Dr. Rodriguez-Monserrate was awarded a grant from the Adult Congenital Heart Association for this project. She is also the primary site investigator in a multicenter study of COVID-19 in the ACHD population, and currently is a co-author in a manuscript in submission identifying risk factors for morbidity and mortality in this group. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. FlyerCognitiveImpairmentinCHDFINAL.pdf
  15. It's not too late to register for ACHA's Wellness Wednesday presentation tonight, "Ask A Peer Mentor: Clinic Directory, Accreditation and Empowerment". You will find out how the ACHD Clinic Directory and ACHA ACHD Accreditation benefit you, the patient. Don't miss out on learning how empowering these tools are. Our panelists are ACHA Peer Mentors, Emily W and Ryan S, along with ACHA Accreditation Manager, Misty Sharpe and ACHA Senior Education Manager, Paula Miller. Register now at www.achaheart.org/AWW. askapeermentordirectoryaccreditationFlyer.pdf
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