Jump to content

pala208

Administrators
  • Content Count

    378
  • Joined

  • Last visited

  • Days Won

    2

pala208 last won the day on April 13

pala208 had the most liked content!

Community Reputation

2 New Member

2 Followers

About pala208

  • Rank
    Elite Contributor

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Bicuspid Aortic Valve Patients: What Are Your Options? Wednesday, June 10, 2020, 7 p.m. – 8 p.m. EDT Presenters: Paul Stelzer, MD, Ismail El-Hamamsy, MD, PhD, and Ali Zaidi, MD About the Webinar Are you an adult diagnosed with bicuspid aortic valve (BAV)? Did you know that 1% to 2% of the population has BAV? If you want to learn more, you should register for this webinar. Drs. Paul Stelzer, Ismail El-Hamamsy and Ali Zaidi from Mount Sinai Hospital in New York City will explain the basics of BAV. They will also talk about available valve replacement options. In addition, the durability of each option will be discussed, as well as how each option impacts quality of life. This information will help you make thoughtful, informed decisions on which valve is best for you today and for years to come. REGISTER NOW: https://bit.ly/3bixUst About the Presenters Dr. Paul Stelzer is Professor of Cardiovascular Surgery at Icahn School of Medicine at Mount Sinai Hospital and attending surgeon at the Department of Cardiovascular Surgery Mount Sinai Hospital, New York, NY. He has performed the Ross procedure in more than 550 patients in the past 27 years. He also has a wealth of experience in other complex valve procedures and correction of ascending and arch aortic aneurysms. Dr. Ismail El-Hamamsy is Professor of Cardiovascular Surgery at Icahn School of Medicine at Mount Sinai and System Director of Aortic Surgery at the Mount Sinai Health System, and the inaugural Randall B. Griepp Professor of Cardiovascular Surgery. His principal surgical focus is aortic root reconstructive surgery in young adults, including patients with heritable and connective tissue disorders. He has performed more than 700 Ross procedures and valve-sparing operations. Dr. Ali Zaidi is a board certified adult congenital heart disease (ACHD) cardiologist who trained in ACHD, pediatric cardiology and adult cardiovascular disease at The Ohio State University Nationwide Children’s Hospital in Columbus, OH. He also received advanced training in cardiac imaging at The Ohio State University. He is currently Associate Professor of Medicine and Pediatrics, Director of the Adult Congenital Heart Disease Center, Director of Pediatrics to Adult Transition of Care Program, and Director of Academic Affairs, Division of Pediatric Cardiology at Mount Sinai Hospital in New York, NY. Dr. Zaidi also serves on the ACHA Medical Advisory Board. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and promotion of ACHD research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. Sponsorship support provided by CryoLife, Inc. WebinarFlyerBAV.pdf
  2. ACHD Imaging: Doc, Do I Really Need All These Tests? Wednesday, June 3, 2020, 7 p.m. – 8 p.m. EDT Presenters: Seiji Ito, MD, and Marguerite Wevers, RN About the Webinar Have you ever wondered about the different types of tests that your ACHD cardiologist has ordered for you, such as cardiac MRI, cardiac CAT scan, echo, and stress tests? Why does he/she order specific tests and not others? What is it like going through all this testing? This webinar will help prepare you for what to expect. It will also help you understand why your doctor might order multiple tests. You don’t want to miss the chance to learn from ACHD cardiologist Dr. Seiji Ito, MD, and Clinical Program Coordinator Marguerite Wevers, RN. Register today to learn more. REGISTER NOW: https://bit.ly/2K7UfxQ About the Presenters Seiji Ito, MD, is an ACHD cardiologist at the Washington Adult Congenital Heart Program at Children’s National Hospital in Washington, DC. He completed the Adult Congenital Heart Disease Fellowship at University of Washington in Seattle after completing a pediatric cardiology fellowship and combined internal medicine and pediatrics residency. Dr. Ito enjoys working with adult congenital heart disease patients and their families and is invested in patient education and medical education. Marguerite Wevers, RN, is a clinical program coordinator nurse for the Washington Adult Congenital Heart Program at Children’s National Hospital in Washington, DC. Prior to her role as a coordinator nurse, she worked in inpatient pediatrics, where she was able to work with patients with congenital heart defects as children when they were being treated in the hospital. Marguerite’s favorite part about working as an ACHD coordinator is getting to build relationships with patients over a long time and taking care of them throughout the different phases of their lives. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and promotion of ACHD research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. Sponsorship support provided by Actelion Pharmaceuticals US, Inc achdimagingflyer2020.pdf
  3. Ask an ACHD Specialist: The ABCs of Telemedicine – Part 1 Thursday, May 28, 2020, 7 p.m. – 8 p.m. EDT Presenters: Arwa Saidi, MB, BCh, MEd, Jonathan Cramer, MD, Marc Cribbs, MD, Camille Richards, MSN, FNP-BC, and Ryan Stephens, DNP(c), FNP-C, MBA About the Webinar Telemedicine is the wave of the future. It makes it possible for your healthcare provider to evaluate, diagnose, and treat you wherever you are using remote technologies, like audio and video. Telehealth includes the aspects of telemedicine, but at the same time, has a broader definition. You might be thinking, especially during this unexpected time of uncertainty, “What does all this mean for me? Will I ever see my healthcare provider in person again? How will he/she examine me? How will I get my blood work or other test done? Do I need special equipment for a telemedicine visit? What about payment and insurance?” These are only a few of the many questions that will be answered by a panel of ACHD specialists on this webinar. You don’t want to miss this. REGISTER NOW: https://bit.ly/2WKGFGp About the Presenters Arwa Saidi, MB, BCh, MEd, is an ACHD cardiologist and Professor in the Departments of Pediatrics and Internal Medicine at the University of Florida College of Medicine. Dr. Saidi is ACHD board certified and is Vice Chair of the ACHA Medical Advisory Board. Jonathan Cramer, MD, is an Assistant Professor, Internal Medicine at the University of Nebraska Medical Center in Omaha, NE, and Medical Director of the Midwest & Omaha Congenital Heart and Aortopathy Program. He is ACHD board certified. Marc Cribbs, MD, is the Medical Director of the Alabama Adult Congenital Heart Disease Program at the University of Alabama in Birmingham, AL and Director, UAB Comprehensive Pregnancy & Heart Program. He is also an Assistant Professor at the UAB School of Medicine. He is board certified in ACHD. Camille Richards, MSN, APN, is director of UMMC’s Adult Congenital Heart/Structural Heart Programs in Jackson, MS. She is also Executive Director of University Heart at University of Mississippi Medical Center. She is a past member of the ACHA Board of Directors. Ryan Stephens, DNP(c), FNP-C, MBA, is a Nurse Practitioner in the Adolescent-Adult Congenital Heart Program at LeBonheur Children’s Hospital in Memphis, TN, and an Instructor in the College of Nursing-Acute and Tertiary Care, University of Tennessee Health Science Center. He is a Heart to Heart Peer Mentor with ACHA. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and promotion of ACHD research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. Sponsorship support provided by Actelion Pharmaceuticals US, Inc telemedinepart1flyer2020Final.pdf
  4. Catheter-Based Options for Valve Problems for ACHD Patients Thursday, May 7, 2020, 7 p.m. – 8 p.m. EDT Presenter: C. Huie Lin, MD, PhD About the Webinar Improvements in cardiac catheterization allow great advances in the care of patients with congenital heart disease. Did you know that recently developed procedures make it possible to treat valvular heart disease without open heart surgery? Dr. C. Huie Lin will talk about what’s currently being done. He will also tell us what is on the horizon. This webinar is not to be missed! Register today. REGISTER NOW: https://bit.ly/3bAeb81 About the Presenter Dr. C. Huie Lin was born and raised in Tempe, AZ. His education and training have taken him to New Haven, CT, Charlottesville, VA, and Boston. Caring for adults with congenital heart disease captured his heart and mind during cardiology training at Washington University in St. Louis. He went on to receive additional training at St. Louis Children’s Hospital and Barnes Jewish Hospital where he specialized not only in adult congenital heart disease, but also in transcatheter interventions in congenital heart disease. After moving to Houston, he started the Houston Methodist Adult Congenital Heart Program, which now continues to grow in its sixth year. Dr. Lin is a member of the ACHA Medical Advisory Board. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and promotion of ACHD research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. Sponsorship support provided by Actelion Pharmaceuticals US, Inc CathOptionsLinFlyer TSFinal.pdf
  5. Ask an ACHD Specialist: COVID-19 Q&A Tuesday, April 21, 2020, 8:00 – 9:00 p.m. EDT Presenters: George Lui, MD, Jeremy Nicolarsen, MD, and Arwa Saidi, MD, BCh, MEd ABOUT THE WEBINAR: We hope you have found our three webinars on COVID-19 for the CHD community to be informative and helpful resources during this unprecedented period. As time passes, we know that there are still so many questions you may have. On Tuesday, April 21, at 8 p.m. EDT, please join ACHA for a full hour Q&A session with ACHD physicians George Lui, MD, Jeremy Nicolarsen, MD, and Arwa S. Saidi, MB, BCh, MEd. We hope you will join us for this informative session! The presenters will be taking questions during the webinar, and you may also submit questions to webinars@achaheart.org. While they will try to answer as many questions as possible, we cannot guarantee we will be able to answer all questions during the webinar. Please note: Our medical providers will not be able to answer any defect-specific questions. Please continue to contact your ACHD Team with questions of that nature. This webinar is made possible in part by sponsorship support provided by Actelion Pharmaceuticals US. REGISTER NOW: https://bit.ly/2V8tP5d About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and promotion of ACHD research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. COVID-19 Q&A Flyer.pdf
  6. March 26, 2020 ACHA webinar "Stress Management in ACHD in Challenging Times" is being held on , Thursday, 3/26/2020 from 7:00-8:00 pm EDt Did you know that living with a chronic health condition, such as congenital heart disease, is something that causes stress? How does this impact you, especially in light of the recent pandemic of the corona virus (COVID-19) and other aspects of your life? How can you manage it? Dr. Kristen Fox will talk about what you can do to take care of yourself and manage stress in your daily life. She will also talk about how you can prevent social isolation in these times of social distancing. You don’t want to miss this webinar. Register today at https://bit.ly/2S6u9Qo. Speakers are Kristen Fox, PhD and Jamie Jackson, PhD. StressManagementFlyer2020ED3.17.2020 TS3.18.20pm.docxSponsorship support provided by Actelion Pharmaceuticals US, Inc
  7. The ACHA Michigan Regional Conference is a dynamic partnership between the Adult Congenital Heart Association and the Congenital Heart Center at Spectrum Health Helen DeVos Children's Hospital. We invite patients, family members, friends and healthcare professionals to learn about specialized lifelong care for adults with congenital heart disease (ACHD) and to connect with the ACHD community. You will have the opportunity to listen and learn from experts in adult congenital heart disease. Please join us on Saturday, May 2, 2020. Registration begins at 8:00 am and the program is from 8:45 am until 4:30 pm. Continental breakfast and lunch will be provided. Registration for patients, family members, and friends for this event is $25. If you register before April 23, 2020, you will receive a $5 discount to the conference. Registration at the door is $50. ACHA MI Reg ConfAgendaConfirmedSC2.28.20.docx
  8. First ACHA webinar of 2020: Reproductive Health in Females with CHD – Contraception, Preconception and Pregnancy, Thursday, 2/13/2020 from 7:00-8:00 pm EST #ACHACares Have you been told that women with congenital heart disease can’t have a safe and healthy pregnancy? If so, attending this webinar will give you information to help dispel this myth. Do you know that it’s crucial to be in ideal health prior to becoming pregnant? This webinar will review the importance of pre-pregnancy counseling and contraception. Specialized care and a shared approach for managing pregnancy risks will also be discussed. Attend this webinar to find out how to have a healthy pregnancy and baby. The speakers are Angeline Opina, MD, and Manisha Gandhi, MD of Texas Children’s Hospital. For more information and to register, visit https://bit.ly/3aeC5Gx. Sponsorship support provided by Actelion Pharmaceuticals US, Inc. ReproductiveHealthFlyer2020.pdf
  9. Final ACHA webinar of 2019: ACHD and Complementary Medicine, Wednesday, 12/4/2019 from 7:00-8:00 pm EST #ACHACares Supplement use and complementary medicine practices are becoming more common. With congenital heart disease, do you wonder if you should try them or avoid them? If so, you want to watch this webinar. Dr. David Gregg, ACHD cardiologist, will talk to us about some of the more commonly used supplements and practices and how they may affect your heart. If you want to learn more, register today. compmedflyer2019.pdf Sponsorship support provided by Actelion Pharmaceuticals US, Inc., and Gilead
  10. ACHA Webinar: Empowering Patients to Talk to their Health Care Team, Wednesday, 11/20/2019 from 7-8 pm EST #ACHACares Are you ever uncomfortable when talking to your adult congenital heart doctor? Are you afraid to discuss your concerns and symptoms or to ask questions? If so, this webinar is for you. David Highfill, LCSW, at the Ahmanson/UCLA ACHD Center, will give you the information you need to help you prepare for your appointments. He will tell you what and who to bring with you, as well as talk about how to ask relevant questions. This knowledge will help reduce feelings of anxiety and confusion when talking to your heart doctor. You will learn how to establish and maintain clear communication with your congenital heart care team. You will leave with tools to build a more effective and meaningful relationship with them. Register today! About the Presenter David Highfill, LCSW, MSW is a Licensed Clinical Social Worker with over 20 years of experience working with a variety of populations across multiple settings including: organ transplant (heart, lung, liver), HIV/AIDS, LGBTQ, renal disease, dialysis, the Veteran’s Administration, Home Health, Hospice, senior care, PTSD, substance abuse, grief and loss, and relationship issues. David is currently working with the Ahmanson/UCLA Adult Congenital Heart Disease Center while maintaining a private therapy practice and supervising Master’s level social workers as they move toward licensure. David is uniquely familiar with many of these issues as he is also a CHD patient who underwent heart transplantation at UCLA in 2012. Sponsorship support provided by Actelion Pharmaceuticals US, Inc., and Gilead Sciences.
  11. ACHA Webinar - Life after the Fontan Monday, 11/11/2019 from 7-8 pm EDT #ACHACares Do you know that most children who had the Fontan procedure go on to lead full and healthy lives as adults? Do you have questions about living life as an adult with a Fontan? Do you wonder about potential health issues later in life? If so, you don’t want to miss this webinar. Dr. Yuli Kim, Medical Director of the Philadelphia Adult Congenital Heart Center, will talk about family planning and pregnancy, liver health, and exercise, as well as living a healthy lifestyle. She will also cover the topic of the potential need for transplant down the line. Register today at https://bit.ly/2nvJLjB . About the Presenter Yuli Kim, MD, is the medical director of the Philadelphia Adult Congenital Heart Center, a joint program of the Children’s Hospital of Philadelphia and the Hospital of the University of Pennsylvania. She completed a residency in Internal Medicine at Johns Hopkins Hospital and fellowship in Cardiovascular Medicine at the Cleveland Clinic before subspecialty training in Adult Congenital Heart Disease with the Boston Adult Congenital Heart program. She has been at the Philadelphia Adult Congenital Heart Center since 2010. She is a member of the ACHA Medical Advisory Board and co-chair of the MAB Patient/Family Program Committee. Sponsorship support provided by Actelion Pharmaceuticals US, Inc., and Gilead Sciences.
  12. Managing Common Illnesses and Vaccine Update for Patients with Congenital Heart Disease Tuesday, October 29 , 2019, 7 p.m. – 8 p.m. EDT Presenters: Rachel Steury, NP and Nancy Klein, RN About the Webinar As someone with congenital heart disease, do you worry about getting sick with common illnesses like upper respiratory infections, the flu and GI bugs? Do you want to learn some tricks for staying healthy during the cold and flu season? Do you know what to do if you do get sick? And what about vaccines? Should you take them? Do they make you sick? Watch this webinar for an update on all of this and more. You’ll also get an update on the vaccines you should receive. Hint- it may be more than you think! You don’t want to miss this webinar. Register today REGISTER NOW:  https://bit.ly/2mjih07 About the Presenters Rachel Steury, NP has worked at Children’s National Heart Institute for over 15 years and with the Washington Adult Congenital Heart (WACH) Program for more than five. She’s co-authored a chapter on ACHD for the American Academy of Pediatrics Common Cardiac Issues in Pediatrics. Her interests include Fontan outcomes and transition programs for youth with Congenital Heart Disease. Nancy Klein, RN has been with the Children’s National Heart Institute for more than 15 years and as Clinical Program Coordinator with the WACH program for nine years. In recent years, she has focused on educating ACHD patients and families about Advance Directives and has presented her research findings at national and international conferences. Her interests include diet and exercise programs for adults with CHD. About the Adult Congenital Heart Association The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and promotion of ACHD research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org. Sponsorship support provided by Actelion Pharmaceuticals US, Inc., and Gilead Sciences.
  13. The ACHA Wisconsin Regional Conference is a dynamic partnership between the Adult Congenital Heart Association and the Wisconsin Adult Congenital Heart Disease Program (WAtCH), Herma Heart Institute, Children's Hospital of Wisconsin, Milwaukee. We invite patients, family members, friends, and medical professionals to learn about specialized lifelong care for adults with congenital heart disease (ACHD) and to connect with the ACHD community in a collaborative learning environment. You will have the opportunity to listen and learn from experts in ACHD. Please join us on November 2, 2019 . Registration and continental breakfast begin at 8:00 am and the program is from 8:00 am until 4:30 pm. Continental Breakfast and lunch will be served. Discounted registration for patients, family members, and friends for this event is $20 through Wednesday, 11/23/19, $25 from 11/24/19 through 11/1/19 and $50 at the door. Register today at https://www.achaheart.org/get-involved/events/2019/wisconsin-regional-conference/. Wisconsin ACHA Regional Conferenceed10.15.19.pdf
  14. The ACHA Colorado Regional Conference is a dynamic partnership between the Adult Congenital Heart Association and the Children's Hospital Colorado Heart Institute. We invite patients, family members, friends, and medical professionals to learn about specialized lifelong care for adults with congenital heart disease (ACHD) and to connect with the ACHD community in a collaborative learning environment. You will have the opportunity to listen and learn from experts in ACHD. Please join us on May 4, 2019 . Registration and continental breakfast begin at 8:00 am and the program is from 8:00 am until 4:30 pm. Continental Breakfast and lunch will be served. Discounted registration for patients, family members, and friends for this event is $20 through Wednesday, 4/25/19, $25 from 4/26/19 through 5/3 and $25 at the door. Register today at https://www.achaheart.org/get-involved/events/2019/colorado-regional-conference/. ColoradoACHA Regional Conference AgendaFINAL.pdf
  15. The ACHA Atlanta Regional Conference is a dynamic partnership between the Adult Congenital Heart Association, and the Emory Adult Congenital Heart Center. We invite patients, family members, friends, and medical professionals to learn about specialized lifelong care for adults with congenital heart disease (ACHD) and to connect with the ACHD community in a collaborative learning environment. You will have the opportunity to listen and learn from experts in ACHD. Please join us on April 13, 2019 . Registration and continental breakfast begin at 8:00 am and the program is from 8:45am until 4:30 pm. Continental Breakfast and lunch will also be served. Registration for patients, family members, and friends for this event is $25 through Friday, 4/12. Registration at the door is $50. Register today at https://www.achaheart.org/get-involved/events/2019/atlanta-regional-conference/. Atlanta ACHA Regional Conference Agenda4.8.2019 FINAL.pdf
×
×
  • Create New...