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  1. Has anyone taken notice that congenital heart disease has no clinical clarity to offer it a chronic or severe listing to be included amongst places such as the social security administration to ensure clarity as to why exclusive healthcare is needed for patients. 10 months after the signing into law of the Congenital Heart Futures Reauthorization Act no money has been placed into the bank to allow research or updating the existing database of patients and potential patients. As much as had been done to raise awareness of congenital heart disease on a national level places such as Health and Human services and the Social Security Administration are still unaware that congenital heart disease is a chronic and/or severe heart disease that needs to be included into its listings accordingly to further assist patients seeking public assistance to ensure healthcare for pre-existing conditions. Once given opportunity to saturate the public sector will the work done to ensure patients with congenital heart disease receive the medical attention needed to ensure quality lifetime progressive treatment. As a patient that is seeking a cardiovascular disability claim with the inclusion of mental health it is important that agencies such as the Social security Administration and Health and human services are aware that not only as a patient am i continually receiving treatments after years of not receiving treatments due to lack of information towards congenital heart disease i will need treatments to span a life time. Lifetime treatments ensure progress towards treatment practices and brings relevance to the individual transitional lifestyle choices from childhood, adolescence and adult congenital heart disease patients. Right now not much is known about safe lifestyle practices adult congenital heart disease patients. Thats why organizations such as the Adult congenital heart Association make sure its team of specialist include the importance of regular doctors visits where you discuss including talking to a nutritionist to be prescribed a heart-healthy diet as well as an exercise routine to ensure you are including preventive heart disease measures in your lifestyle. Despite the lack of knowledge and insight towards adult congenital heart disease living there are astronomical differences from pediatric congenital heart disease living to where adults primarily are suggested to live an active lifestyle even though activities such as pregnancy and certain sports will never be suggested an active well-balanced lifestyle is considered to be normal for an adult congenital heart disease patient. We are just asking for some assistance with the $3,500 sonography exam 2 to 3 times a year or the $3,000 stress test once every 3 years or the $3,500 echocardiogram 4 times a year or the $2,000 a month atrial arrhythmia mobile monitor? These are things that once the public sector is willing to have more of an understanding of when dealing with adult congenital heart disease living then will inclusions of progressive and innovative healthcare be offered for all congenital heart disease patients that will offer lifetime benefits.
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