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So its been a while since my last posting. If I can recall correctly i was still awaiting a judge's decision to move my case against the acting Social Security Administration commissioner to be heard in front of a jury of my peers. Well that has yet to come but there has been some changes to how i receive medical attention. As of September 14, 2021 have been granted eligibility to receive state funded Medicare. I have full medical and dental coverage. I am just now writing about it because I was just notified of the information of which when i found out i got right on the ball to find-out who my primary care provider would be. Right now it is a medical facility called Community medical group and upon my initial visit when i listed my congenital heart disease related symptoms they listened and responded. Something that was completely different of the staff at Central Florida Healthcare. Hell Joel Hardin of the Tampa Bay Adult Congenital Heart Center didnt even show signs of compassion when i visited jis office during an initial meeting and i told him it had been well over 30 years since being seen by a congenital heart disease specialist. I guess having insurance does affect how your treated by healthcare providers. Anyway so as of now for the first two weeks of the new year i will being going to my new primary care provider taking test and establishing links to my other doctors to start a new line of communication. I am just praying that the blessings dont stop and that what i am witnessing currently is exactly how all my medical needs will be attentioned and handled, with urgency and showing compassion towards me the patient.
I'm Carmen G, 24 yrs old. I have Congenital heart defect is pulmonary atresia with dextrocardia and I have had a bidirectional Glenn and Fontan as surgeries. So I am considered to be a single ventricle with Fontan. I always felt alone in my conditions when I growing up. Telling people about my scars, why I had a cardiologist so young and why I did the pledge allegiance "wrong". I never really had anyone I could relate to just my poppop cause he had heart surgeries but nothing compared to me. We use to compare pain haha When weather was changing or scar tissues were moving. But I'm excited to meet people and relate to people who actually understand what I am going thru. Right now I'm 24 and finally found a adult cardiologist who understands me. She is Dr. Shah in VCU in Richmond, VA ( highly recommend ) As my health I'm doing alright just need to work on exercises to work up my legs and heart muscles. I need to work on vitamins as well and keep an eye on my protein which is a little high but not too bad. I learned I have varicose veins in my left leg so I need to compression socks. As of now I am good but I don't know what the future holds but we'll see. Thank you again