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Webinar: Ask a Peer Mentor: LGBTQ+ and the ACHD Experience on Wednesday, June 30, 2021

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Webinar: Ask a Peer Mentor: LGBTQ+ and the ACHD Experience

Date: Wednesday, June 30, 2021

Time: 7 p.m. – 8 p.m. EDT

Presenters: Stephen Cook, MD, FACC and ACHA Peer Mentors Ken W. and Kim E.


About the Webinar

As part of ACHA's ongoing commitment to diversity, equity, and inclusion, it is important to create opportunities to discuss topics pertinent to every patient in the CHD community. To conclude Pride Month, join Dr. Stephen Cook and ACHA Peer Mentors Ken W. and Kim E., both adults living with CHD, as they discuss their own personal experiences as part of the CHD and LGBTQ+ communities.

While CHD affects 1 in 100 individuals regardless of socioeconomic status, race, ethnicity, or gender, each person's journey with CHD is different. In addition to type of defect and surgery, personal experiences and attributes, such as race, sexual orientation and gender identity can also influence how someone accesses and receives healthcare. According to the latest Gallup poll, around 5.6% of U.S. adults identify as LGBTQ+. Underrepresented minorities, including not only sexual and gender minorities, but also adults with CHD, often face disparities and bias in healthcare resulting in additional stressors that may impact patient well-being and health outcomes.

Register for this webinar today to learn more from our speakers and for the opportunity to ask them questions.

About the Speakers 

Stephen Cook, MD, FACC, is the Director of the IU Health Adult Congenital Heart Disease Program in Indianapolis, IN. Dr. Cook served on ACHA’s Task Force on ACHD Health Disparities and Diversity and has also been selected by the American College of Cardiology to serve on the Diversity and Inclusion Committee. The goal of this committee is to harness the power of diversity to advance patient care and improve health equity among unique patient populations.

Ken W. was born in 1981 with tetralogy of Fallot and like many adults with CHD, thought he had been fixed and was lost to cardiology care as an adolescent. He returned to care in August 2011 following a biking accident. Ken became a Peer Mentor to help other adults with CHD and their family members navigate the challenging and overwhelming aspects of life with congenital heart disease.

Kim E. was born in 1966 and is a mother of three with transposition of the great vessels, pulmonary stenosis, and ventricular septal defect. Over the years, she has had multiple surgeries. Kim has been involved with ACHA for many years and became a Peer Mentor to support others on their journey.

About the Adult Congenital Heart Association

The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and extending the lives of adults with congenital heart disease (CHD). ACHA serves and supports the more than one million adults with CHD, their families, and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and research. For more information about ACHA, contact (888) 921-ACHA or visit www.achaheart.org.

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